Internet-savvy patient or “cyberchondriac”?

Patients who show up in their doctor’s office after having already conducted countless hours of internet research and come up with several potential self-diagnoses can prompt some mixed feelings from physicians. While some may embrace their patients’ desire to know as much as possible about their condition, others can find the task of battling against bad information cumbersome and detrimental to care. Yet, according to an interesting BBC piece from Dr. Anthea Martin, senior medical adviser with the Medical and Dental Defense Union of Scotland, doctors should be careful about dismissing patients who turn to the internet for medical research as “cyberchondriacs.”

Referring to findings from a new study, published this month in the British Journal of General Practice, which analyzes the impact of patients’ internet research on doctor’s diagnoses and care, Martin says that doctors concerns’ range from worry that they won’t be able to digest and respond to the patients’ materials and concerns within the allotted appointment time, to fear that patients may have strong feelings about inaccurate or misleading medical information garnered from less than trustworthy sites. What’s more, some physicians included in the study also said that they struggled with anxiety when they felt patients might potentially be more informed about a condition than they were. As Martin writes:

“Some [general practitioners] said they were frightened of losing control of the consultation and of the prospect of having to admit to their patient that they have read something they don’t understand.”

Yet, whatever anxieties or concerns may arise when a patient shows up for an appointment with an armload of internet print-outs, Martin stresses the importance of taking his or her concerns seriously. While, in many cases, after hearing a patient out—or thumbing through the research—all of that web wisdom won’t necessarily add up to much (or apply to their ultimate diagnosis or treatment), in some cases it might. Dismissing a patient’s research out of hand runs the risk of overlooking something important, she says. Martin concludes:

“The message for doctors is clear: don’t dismiss web-wise patients. The risk here is that they may miss an important medical problem. Doctors must listen to what every patient has to say and should consider carefully information presented to them by the patient—even if after doing so they decide to dismiss that self-diagnosis of dengue fever.”

What do you think? Have you ever gone to the doctor’s office with theories about what your diagnosis might be after researching on the web? Or, if you’re a physician or other health care provider, how have you dealt with patients when they come armed with hours of web research? What do you think marks the line between being an informed patient, and being a “cyberchondriac”?

Read Dr. Martin’s full viewpoint for the BBC here.

Related Topics: cyberchondriac, doctor, internet research, patient, Medicine
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  • http://mdlyons.wordpress.com mdlyons

    Well, dismissing someone as a “cyberchondriac” is an arrogant and patronizing thing to do. My wife has suffered from Chronic Fatigue and Skin Disorders for the past few years and has yet to get a proper diagnosis. As a result, both her and I spend a considerable amount of time on line trying to find a cause for her illness, since her Dr. does not seem to have any answers and is fairly incurious as to the cause of her symptoms. He would much rather pretend that it is “all in her head” and write her off as a “cyberchondriac.” Its such a self-serving cop-out, that lets the Dr. off the hook. “I don’t know what’s wrong with you so you must be crazy. Look, you’re reading all that stuff on the internet, further proof that you’re crazy.” How convenient!

  • http://www.youtube.com/watch?v=9vKP4SJqg78 thegalleryofrichard

    In the region I’m in, it’s not only controversial to open up medical resource people get online to doctors, it’s also frustrating and even leads to some awkward doctor-patient relationship. There’s always the chance that you’re not on the same page and when that happens doctors can’t seem to blame the patients why they won’t follow the exact prescriptions since the medical resource online might show some variety or alternative perspective on the, say, dosage needed for the treatment. Point is, the resource online highlights more clearly the seemingly subjective nature of the medical concern.

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  • johio2

    I’m pretty happy that my brother and sister-in-law were “cyberchondriacs” on my mother’s behalf in 1999. After a month of daily deterioration in the hospital, the doctors there seemed resigned to the fact that she was an old woman whose time had come. They had pretty much given up trying to diagnose the reasons why she couldn’t eat, was prone to infections, and was gradually losing contact with reality, among other things. A fairly easy internet search led us to believe that Mom was suffering from Addison’s Disease. The next morning, after initially resisting, her doctor ordered a simple blood test that confirmed our suspicions. 30 minutes after a shot of prednisone, she was sitting up eating lunch and carrying on a perfectly rational conversation. She went home the next day. Now, 11 years later at age 88 she’s still going strong. Lesson – doctors don’t know everything. If you have well-grounded suspicions that your doctor refuses to investigate, then you need a new doctor.

  • nydoc

    I encourage my patients to educate themselves. If nothing else a dialogue is generated. Valuable clinical information can still be obtained from an erroneous self-diagnosis.

    Educated patients make better patients. My advice is for people to find a doctor who will empower them to participate in their healthcare.

  • http://gingerrzz.wordpress.com gingerrzz

    My grandfather had a rare lung condition that made his lungs calcify and essentially turn to stone. Even in Boston, there were no specialist on his case. He did so much research he knew more than any of his doctors. I’m sure he was a difficult patent to work with; with his iron will he probably would have operated on him self if they let him. But case and point he was given a year to live, and he lived 14 more healthy strong years, and declined rapidly in his last. His smart internet research gave him 15 years.

    A doctor should never feel inferior because he/she doesn’t know much on a specif case. They have earned the title doctor for a good reason, but no one can know everything. Doctors should also provide their patents with good sources and how to weed out the bad ones. example, Time and national geographic, awesome, yahoo blogs, wiki…not so much.

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